Tuesday, August 29, 2006

Down and Out


Wow, does six am come very very early!!! Well, we drove this morning for my date with the vampire (aka the nurse who steals my blood.) I'm not big on needles, but as of late they aren't so bad anymore. Since this was a fasting blood test, I brought some crackers with me so I could eat afterwards. No big deal. I sat in the chair feeling confident and ready for it this time. The vampire began removing viles for the blood...1...2...3...4...5...6...7...8 of them in all!

Big sigh...No big deal. It's only a small needle.

Viles one through four were fine. Vampire and I discussed the new bagel place (Bruegger's), which is great because I love them! Vile 5, I began feeling a bit tired. Vile six, I began to sweat. By vile 7, I was warning the nurse that I wasn't feeling so well. She quickly squeezed in vile eight, just as I said, "I want my mom."

Three minutes later...

I wake up to three very perky vampires and a trying not to smile mom. "You ok?" they all asked. Oh, yes, I did pass out this morning. I eat breakfast every morning the instant I get up. I always have. If I don't it is quite the miserable experience. I get cranky, moody, naseaus, and extremely hungry. So, a fasting blood test is not so fun. I don't think my mom or myself was all that shocked. C'mon eight viles! They are checking everything from my estradiol level to an HIV test.

Well, now I am happy to be relaxing on the couch. There will be no more poking or prodding until Friday. Amen.

Monday, August 28, 2006

Uggghhhh

I called the RE today and scheduled my cycle day three bloodwork, so tomorrow I go in bright and early. Friday is my saline infusion ultrasound. I should receive a call today to schedule my lap/hys surgery. If I was a betting woman, I would say the second week of September.

Today, I'm forcing myself to get out despite the cramps from hell. So, I'm spending it with one of the two people in this world who can tolerate me like this...my mom. We should finish up my sewing project, and perhaps sew a tablecloth that matches my new dining room color scheme!

Saturday, August 26, 2006

Today

Today we excitedly went to lunch, and I was sat between my husband and a lovely woman in her 70's. My position was between all of the groups of people. Smack dab in the middle. So, I heard conversations about daughters scoring positions with an investment firm (Even has a butt kickin' office. My congrats, truly,) about a two year old grandbaby and another one on the way any day, new homes being redone, and on and on and on. I however, stared at this....









I had nada to contribute. The only thing happening in my life centers around my reproductive organs...not exactly great conversation for mixed company. I have no job, just doctor's appointments...no children, just a pug...no home renovation going on, no major accomplishment to discuss (unless you count surviving an HSG, 2 pelvic ultrasounds, numerous blood draws, a CT scan, two MRIs, 3 and a half years of infertility, and on and on and on) Of course, I chalk those up as accomplishments, but you can't bring them up over lunch. I'm an intelligent and articulate woman, but I felt like such a loser today.

The day got better as the people began to dwindle, and we were left with those who were aware of the situation. We played games, laughed, and even drank a daquiri. It ended well, but I need to have some stand by conversations prepared for these situations. I'm learning to sew...have you been to such and such restaurant lately...the weather is always good...hmmmmm... I guess small talk hasn't been in abundance lately. I must practice.

Well, I'm off to take a sleeping pill and some Motrin. My back is aching, and now I am fully aware that my kicked back and oh so relaxed uterus is the cause...Will tomorrow be day one? We will see.

Thursday, August 24, 2006

Just Another Day in Paradise

Yesterday was yet another trip to the doctor. They may start charing me rent! To spare the long story here's the gist:

1. slightly insulin resistant (could be pre diabetic, and something to watch for.)
2. borderline PCOS (Polycystic ovarian sydrome) It's not all that shocking after reading the symptoms. However, I'm only borderline, and don't currently have that diagnosis.
3. I am anovulatory. They can say with 100% guarantee that I did not ovulate this month. Kind of hard to make a baby without the egg now isn't it!

So, she said that she wanted to run the same tests as my RE. Good news, and they will both be there for the laparoscopy, hysteroscopy, and a saline HSG (remember that the HSG was the one that hurt really bad!) Oh, and let's not forget the cycle day 3 blood work. Why is it when you want your cycle to start, it won't?

Ok, non fertility related...

After reading Jaime's blog, I am now dying to have a Starbucks. The good news, there is one not too far from home. The bad news, I promised myself Starbucks is reserved for days when I have doctor's appointments that will be painful or when I have to be brave. Today bummin' around the house cleaning, and then watching the neighbor's daughter for 45 min, then hanging around with mom doesn't fall under either of those categories.

Anybody know when the pumpkin spice latte is back? Doesn't is sound soooo yummy!!!

Monday, August 21, 2006

What a day...

Today we went to the RE, and as expected, he ordered some more tests to include: Bloodwork on cycle day 3, a saline infusion ultrasound (similar to an HSG), and a laparoscopy (see below.)

Laparoscopy is direct visualization of the reproductive system: Ovaries, outside of the tubes and uterus by using a laparoscopy. The laparoscopy is an instrument somewhat like a miniature telescope with a fiber optic system which brings light into the abdomen. It is about as big around as a fountain pen and twice as long.

An instrument to move the uterus during surgery will be placed in the vagina. Carbon dioxide (CO2) is put into the abdomen through a special needle that is inserted just below the navel. This gas helps to separate the organs inside the abdominal cavity, making it easier for the physician to see the reproductive organs during laparoscopy. The gas is removed at the end of the procedure.

The will go in near the navel and also vaginally. No worries, I will be under for this one! Whew!

They will check for endometriosis, cycts, and of course to examen my "horn." Should the doctor dertermine it essential, I may leave with a partial hysterectomy (aka, removal of my horn.) I won't know until I wake up.

The good news is that he believes that these tests may prove my uterus is large enough to carry a child with minimal risks. I won't be counting my eggs until they are hatched though. (OK, now that was funny.) The doctor said that we will never conceive on our own. Not surprising. However, I can feel myself holding my breath. I will be happy no matter how we expand our family...myself conceiving, a gestational carrier, adoption...I just want a family.

The doc is also going to check for diabetes, because it runs in my family. He doesn't believe I am diabetic, but he wants to cover his bases. He also wants to check for my blood clotting ability. We also have a history of blood clots in our family, and so therefore it falls under the better check now to prevent future issues.

So, there's a lot on the plate. Wednesday, I head back to the doctor to review my MRI and CT slides.

Yikes. So many tests, each one holding my future in their hands. I'm nevous, excited, and feel as if I'm waiting for the other shoe to drop. I'm not sure what to feel. I guess, I'm going to continue taking each day one at a time. I'm going to keep my slate clean, and take it as it comes. Take it slow.

However, I'm glad that today didn't bring bad news.

Friday, August 18, 2006

To the RE

It's no secret that I haven't been sleeping well since "the news." However, last night I decided to take a sleeping pill. It was the only way of turning my mind off. So, I peacefully dozed, but my poor poor husband had to endure my kicking legs. I guess I ran a marathon last night! So, he wasn't feelin' so hot today on his two hours of sleep.

So, there I was peacefully sleeping when at 8:06 am, I hear the phone ringing...

"Um, Mrs. Winks?"
"Yes, that's me."
"This is Huntsville Hospital. We, um, need you to come back for a few more images. "
"Why?" I snap back and instantly feel guilty knowing I'm just groggy. "Sure, I can come in today."
Er, um, can you make it in today at 11:30?"
"I'll be there. How long will it take?"
"Only half an hour."

So, there I tooled back to the imaging center for another MRI. I guess it just wouldn't be right to not have to go to the hospital every day this week. However, I'm glad I went because they let me see my uterus and the horn. Very interesting. I'll post a picture of it soon.

Then, low and behold I called the RE to see if there were any cancellations, and there were! Ok, the odds of that were slim. So, I get to go in on Monday instead of waing until October! I have so many questions that I don't know where to begin! So, I'm happy that I will have more information soon. I will say that my uterus is becoming quite the miny celebrity these days. I guess it's not every day you come across a unicornuate uterus with a communicating horn! From the point I'm going to refer to it as UUCH. Just easier. Soon I'll need a decoding section on my side bar.

Thursday, August 17, 2006

The Phoenix

There is a bird that lays no eggs and has no young. It was here when the world began and is still living today, in a hidden, faraway desert spot. It is the phoenix, the bird of fire.
One day in the beginning times, the sun looked down and saw a large bird with shimmering feathers. They were red and gold--bright and dazzling like the sun itself. The sun called out, "Glorious Phoenix, you shall be my bird and live forever!"

Live forever! The Phoenix was overjoyed to hear these words. It lifted its head and sang, "Sun glorious sun, I shall sing my songs for you alone!"

But the Phoenix was not happy for long. Poor bird. Its feathers were far too beautiful. Men, women, and children were always chasing it and trying to trap it. They wanted to have some of those beautiful, shiny feathers for themselves.

"I cannot live here," thought the phoenix. and it flew off toward the east, where the sun rises in the morning.

The Phoenix flew for a long time, and then came to a far away, hidden desert where no humans lived. And there the phoenix remained in peace, flying freely and singing its songs of praise to the sun above.

Almost five hundred years passed. The Phoenix was still alive, but it had grown old. It was often tired, and it had lost much of its strength. It couldn't soar so high in the sky, nor fly as fast or as far as it was young.

"I don't want to live like this," thought the Phoenix. "I want to be young and strong."

So the Phoenix lifted it's head and sang, "Sun, glorious sun, make me young and strong again!" but the sun didn't answer. Day after day the Phoenix sang. When the sun still didn't answer, the Phoenix decided to return to the place where it had lived in the beginning and ask the sun one more time.

It flew across the desert, over hills, green valleys, and high mountains. The journey was long, and because the Phoenix was old and weak, it had to rest along the way. Now, the Phoenix has a keen sense of smell and is particularly fond of herbs and spices. So each time it landed, it collected pieces of cinnamon bark and all kinds of fragrant leaves. It tucked some in among its feathers and carried the rest in its claws.

When at last the bird came to the place that had once been its home, it landed on a tall palm tree growing high on a mountainside. Right at the top of the tree, the Phoenix built a nest with the cinnamon bark and lined it with the fragrant leaves. Then the Phoenix flew off and collected some sharp-scented gum called myrrh, which it had seen oozing out of a nearby tree. The Phoenix made an egg from the myrrh and carried the egg back to the nest.

Now everything was ready. The Phoenix sat down in its nest, lifted its head, and sang, "Sun, glorius sun, make me young and strong again!"

This time the sun heard the song. Swiftly it chased the clouds from the sky and stilled the winds and shone down on the mountainside with all its power.

The animals, the snakes, the lizards, and every other bird hid from the sun's fierce rays -- in caves and holes, under shady rocks and trees. Only the Phoenix sat upon its nest and let the suns rays beat down upon it beautiful, shiny feathers.

Suddenly there was a flash of light, flames leaped out of the nest, and the Phoenix became a big round blaze of fire.

After a while the flames died down. The tree was not burnt, nor was the nest. But the Phoenix was gone. In the nest was a heap of silvery-gray ash.

The ash began to tremble and slowly heave itself upward. From under the ash there rose up a young Phoenix. It was small and looked sort of crumpled, but it stretched its neck and lifted its wings and flapped them. Moment by moment it grew, until it was the same size as the old Phoenix. It looked around, found the egg made of myrrh, and hollowed it out. Then it placed the ashes inside and finally closed up the egg. The young Phoenix lifted its head and sang, "Sun, glorious sun, I shall sing my songs for you alone! Forever and ever!"

When the song ended, the wind began to blow, the clouds came scudding across the sky, and the other living creatures crept out of their hiding places.

Then the Phoenix, with the egg in its claws, flew up and away. At the same time, a cloud of birds of all shapes and sizes rose up from the earth and flew behind the Phoenix, singing together, "You are the greatest of birds! You are our king!"

The birds flew with the Phoenix to the temple of the sun that the Egyptians had built at Heliopolis, city of the sun. Then the Phoenix placed the egg with the ashes inside on the sun's altar.

"Now," said the Phoenix, "I must fly on alone." And while the other birds watched, it flew off toward the faraway desert.

The Phoenix lives there still. But every five hundred years, when it begins to feel weak and old, it flies west to the same mountain. There it builds a fragrant nest on top of a palm tree, and there the sun once again burns it to ashes. But each time, the Phoenix rises up from those ashes, fresh and new and young again.


I too feel like a phoenix. Tired and worn from years of infertility only to find that I will never bear my own child. My world went up in flames this week, but like the Phoenix I will be reborn. Only this time, I will have a new purpose...the next volume in the series of my life. I too will rise stronger than before, but only after the ashes from this week settle.

Being as Strong as I Can

Wednesday, August 16, 2006

The Inside of Me







The inside of me feels like a tornado. Emotions, fears, and dreams all swirling around inside. Like a tornado, they are on me before I know it.

All the words keep swirling around, and fleet before I can comprehend what they mean.

A wise butterfly once told me to believe in miracles...

I'm not sure of much these days, but I am sure however we expand our family will be a miracle.

Tuesday, August 15, 2006

The Busy Beaver

A clever title to add a little humor to what has been one of the worst days of my life. I will make a solid attempt to describe what the doctors have found in understandable terms.

Here's the diagnosis: Unicornuate Uterus with Communicating Horn

Yup, certainly is a mouthful.

The uterus and fallopian tubes form in a developing baby from two separate ducts, which fuse together in the middle to create the uterus. Many things can go wrong during this complex process. When only one of original ducts develops, the result is a unicornuate uterus -- a uterus of half the normal size, with one fallopian tube. However, development of the ovary is determined separately, and usually both ovaries are present in women with this anomaly.

A CT scan of the pelvis (mine is on Thursday) or a transvaginal ultrasound (completed today)may well show that your ovary is in fact present (they are.)

Three separate subtypes of unicornuate anomaly are: a unicornuate uterus with a rudimentary horn that does not contain endometrium; a unicornuate uterus with a rudimentary horn which does contain endometrium but does not communicate with the main uterine cavity; and a unicornuate uterus which has a rudimentary horn which contains endometrium and does communicate with the main uterine cavity (mine is the last one.)

A unicornuate uterus can support a normal pregnancy. About 40% of pregnancies will end in spontaneous abortion, 20% in live births. Unicornuate uterus may go undiagnosed until the patient is evaluated by a hysterosalpingography HSG (Yes, that was where mine was discovered) or is subjected to a surgical procedure. At HSG, the uterine cavity is a "banana" shape, and curved to one side, instead of having a normal triangular shape (Fig.1). Only one tube works properly.

People who have a unicornuate uterus are more likely to have endometriosis (I'm not surprised,) increased chances of miscarriage (not shocking,) and have premature labor. Furthermore, I am only ovulating every other month due to the fact that I have only one fully functioning fallopian tube (due to this condition.)

So, basically my uterus is smaller than a normal one, and is not receiving as much blood flow as a normal uterus. The reason for this is that there is another smaller "uterus" on the lower right side. The smaller uterus is not capable of sustaining pregnancy, and if an egg implants there, it will 100% end in a miscarriage. If an egg implants on the left hand side, it will receive less blood and will only stretch to a certain size. I still have to determine how large of a baby it is capable of carrying. What happens is, say it is only capable of holding a four pound baby, once the baby is four pounds, my uterus will no longer stretch and I will go into labor. So, people with this are placed on bed rest for the majority of their pregnancy.

In addition, due to the way a baby develops while in the uterus, people with this condition are also at a high risk of kidney problems. So, I am also scheduled to have my kidneys examined.

It was an interesting and devastating day. I'm emotionally a mess, and am about to begin rounds of testing that will bring with them even more information to digest. I never saw this one coming. For the past few years, my emotions regarding my infertility have been all over the map from anger and depression to excitement. I've lashed out, felt misunderstood, and just now, I'm learning to reach out. It's difficult though, because what is happening is so intensely personal. How exactly to digest what today brought is still a mystery to me. It's not just me that it affects, but my husband, family, and friends as well.

Tomorrow they are checking my glucose, prolactic, insulin level, TSH, and progesterone. Thursday is my MRI and CT Scan. The first date I could get with the RE (reproductive endocrinologist) is October 10th. This too is even upsetting. First it means that I have to wait patiently for October, (which feels like forever from now), second I will miss my cousin's wedding (whom I love dearly,) and third I will be missing visiting my husband's parents which was slotted for that week. What a mess.

The only positive thing I took from today was that I have a wonderful husband, amazingly supportive parents, and some wonderful friends who have hearts of gold. I love them all.

Tuesday, August 08, 2006

Morning

I will give my ear until tonight. If it isn't better, tomorrow morning the doc will find my sitting in his waiting room yet again. That's all I have to say about my stupid ears.

As far as the HSG procedure from yesterday, still a bit sore, but nothing worth crying over. I'm just glad it is over!

Today looks like it will be some running around doing errands. (It also happens to be Justin's birthday!) I wish I had enough disposable income to take him somewhere fancy. Hell, he's not a complicated man, even somewhere just plain fun would work. He'd be happy with our favorite bbq joint (to be honest, so would I!)

Tomorrow, I have sewing lessons. (laughing) Why not!? I figured I could master a skirt, learn a shirt, and then who knows what else! A new skill is always fun to learn.

Thursday, hmmm, nothing planned for that day. We shall see.

Friday, I am "relaxing" with my friend Krista and her daughter Kennedy (17 months,) Ashley and her triplets (15 months.) So, I think the kids have us outnumbered. Either way, I would normally say hell no, I'm not hangin out with four children. (Only because I want one so badly.) However, Krista makes things different. I feel that every time I see her, I come back with a future parenting tip, and she makes you feel like you are an important part of her life. I was elated when I went over the other day and her daughter said my name! Yeah! Go Aunt Becky!

I have to stop over and see some of my other friends, because it feels like its been forever. I miss some of them!

Monday, August 07, 2006

Ouch

I had the HSG test done today. Both my mom and Justin were there for moral support and to keep each other company in the waiting room. I'll tell you what, there's nothing like some big intimidating machines and your butt hanging out of a hospital gown to make you feel like a little kid and scared as can be. However, I was a brave girl today and had my game face on. The table was cold, but not nearly as cold as the doctor's disposition.

It wasn't the cold speculum, rather the catheter and intense pressure of the dye running through my tubes. No major obstructions was all he had to say. Um, ok. That sounds good. So were there any minor ones? I didn't even have time to ask, because he was gone two seconds after he removed the speculum. I guess I will know when my doctor calls tomorrow. All he said during the proceedure was I had a large uturus (um, hope that's good) and a beatiful cervix (what's that supposed to mean?) Later the nurse, said it would have hurt more if I had a tipped cervix. Thank God that wasn't an issue. Afterwards, she gave me some towels and such to clean up with. Nasty. Not exactly a procedure I would care to repeat.

I felt my blood pressure drop after it was over, probably due to stress and all the meds I'm on to begin with. So, Mom and Justin took me to get some food. I felt much better after that. However, I would be a gonner without my Vicadin the doc gave me for my ear infection. Go figure. They told me no pool or monkeying around in that region for a week. So, here I am in my granny panties wearing as they tell you a pad (why would anybody choose to wear these?) feeling extremely sore, mellow from the drugs, and hopefull that that this procedure will bring us a step closer to having children.

My next test should be easier. My pelvic ultrasound is on the 15th, and I just have to drink 30 some odd ounces of water an hour before the test. My bladder is so tiny, that this should make for some fun. Either way, I'm glad we are finally making progress.

More later,
Becky

Thursday, August 03, 2006

Super Swimmers!


How strange it feels to type with pride that my husband has amazing sperm. Yup, never thought that would be a subject to beam about! However, after reading and being touched by a lot of other blogs out there who suffer from male factor infertility, I feel grateful for the results. Click here to read about a semen alalysis. As it turns out he had 1,316 motile sperm, no white blood cells (a good thing,) his morphology was 43% (supposed to be more than 30%,) motility 94% (supposed to be better than 40%,) conentration was 175 (supposed to be greater than 20.) So, that's just a few. I will have the full lab test in my hand on Monday when I go for my HSG.

On the health front, I think I'm about ready to rip my ear off. This ear infection is kicking my ass. The highlight of my day was getting out of bed. My entire ear is swollen shut. I hope that they don't have to wick my ear again. Although it may be better than the situation now. At least I would know the meds are making it in there.